Welcome to
Post-Polio BransonGoers Association (PPBGA)... Feel free to browse our site and
please sign our guestbookbefore you leave!
In 1955, Jonas Salk developed the Polio vaccine and the terrible Polio
epidemic was eliminated. Or was it? For more than 1.6 million Americans,
there has been no cure. Survivors of polio who believed they had
put the disease behind them forever, find they are once again struggling
with chronic symptoms. Along with the debilitating physical aspects,
survivors also face the emotional devastation of Post-Polio Syndrome
(PPS).
What Is Post-Polio Syndrome?
Post-polio syndrome (PPS) is a condition that affects polio survivors
anywhere from 10 to 40 years after recovery from an initial paralytic
attack of the poliomyelitis virus. PPS is characterized by a
further weakening of muscles that were previously affected by the polio
infection as well as other areas once thought to be unaffected.
Symptoms include fatigue, slowly progressive muscle weakness and, at
times, muscular atrophy. Joint pain and increasing skeletal
deformities such as scoliosis are common. Some patients
experience only minor symptoms, while others develop spinal muscular
atrophy, and very rarely, what appears to be, but is not, a form of
amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease.
PPS is rarely life-threatening.
Who We Are:
Post-Polio BransonGoers
Association (PPBGA) is a group of polio survivors and their spouses,
family, friends and significant others who have discovered each other and
the support that exists when we share our stories, our lives and our
coping methods. We offer
support not only for polio survivors, but also for their supporters.
We are more than
a group for support... we are a family, we are friends, and we are...
above all... there for each other. There are no fees or dues to
join PPBG. There are no territorial boundaries, no
limitations as to color, race, religion, age, disability, political
beliefs, or marital status. However, to become a member, it is
understood that you know a person or family who has had polio or has
post-polio syndrome (PPS). Members are invited to join
the fun at our annual gathering in Branson, MO. USA.
What We Do:
We gather once a year in
Branson, MO. USA. We enjoy visiting
with one another and
learn from speakers and from other people who have had the same
experiences as we have. Some are further along this path of
post-polio... others not as far. Each has something to share;
isolation, fatigue, concerns about the next step they should take, or experiences.
Or, exchanging information, lending support,
encouragement, and/or hope. All these lead to enhancing self-esteem. Along with the care and support polio survivors receive from their
medical team, more and more of them are finding relief and comfort from
participating in support groups.
We are here to promote independence and enhance the lives of all polio
survivors. We do this by offering support, information and
education, while raising national awareness of polio and post-polio
syndrome. Our guest speakers may address topics such as
psychological adjustment, nutrition, exercise, durable medical equipment,
braces and orthotics, power chairs, scooters, or home modifications.
We welcome all polio survivors, their friends, family, and other
supporters to join us, even though you may already be a member of a local
support group in your area.
Oh, And
did I mention we like to have fun!??
"We can either complacently accept whatever befalls us and the people
around us
or we can accept the responsibilities that come with this
painful, beautiful,
fascinating journey that we call life."
~
Dana Reeve
A web cast presentation about
polio was given by Dr. David Oshinsky, author of the 2006 Pulitzer
Prize winning book "Polio: An American Story", at the University of
Texas at Austin. In his presentation entitled "Race for a
Cure", he tells the enthralling account of America's battle with
polio, the terror it caused, and the intense effort to find a cure.
You are invited to view an archived video of the talk online.
The link to the Lecture Series website, where the details of
the lecture and the web cast can be found, is at
A note about third-party links
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We encourage you to read and evaluate the privacy policy and
disclaimer of any site you visit when you enter the site.
While we strive to only link you to companies and
organizations that we feel offer useful information,
Post-Polio BransonGoers does not directly support nor
guarantee claims made by these sites.