POLIO & PPS NEWS RESOURCES

Disability Links
Disability Advocacy
Home Modifications
R.A.L.P.H.
Social Security Admin.
The Sertoma Foundation

Accessibility Links
Access to Independence
Automotive Accessories
Durable Medical (DME)
Handicapped Traveling
Health Care Resources
Other Health Resources
Medicines / Herbs
Books
Audio, DVD, Video
Sleeping Disorders
Orthotics
Service Animals
Warm Clothing
Mismatched Shoes

PPS Newsletters
BransonGoers Gazette
Henry Holland Writes
Kansas Connection
Polio Messenger
Polio Particles

Branson Links
Branson Local Info
Branson Settle Inn
Lambert's Cafe

Member Area
Email Login
Message Board
Chat
Calendar
Member Information

Contact Information
 

Some folks ask me where I get such a great attitude
..........

I usually tell them that I can't remember.
 

Some links may require Acrobat Reader


 

    Some links may require Acrobat Reader


 

Mobility Scooters and Power Chairs
by Daryl Clayton Kennedy

Looking to Start a Support Group?
Post-Polio Philosophy, Guidelines and Resources from Post-Polio Health International.

Kmart Access Settlement Website
Kmart has entered into an agreement to settle a class action lawsuit concerning the accessibility of its stores for individuals who use wheelchairs or scooters for mobility.

Adaptive Automotive Accessories

Allsup - Disability Claim Service
Qualify for monthly disability income from Social Security-under age 65; qualify for early Medicare coverage to pay your medical bills and/or collect on the Social Security taxes you've paid.

Audio / Video / DVD's on Polio/PPS

Books on Polio/PPS

Boulevard
A disability resource directory of products and services for the physically challenged, elderly, caregivers and healthcare professionals.

Clothing & Accessories for Wheelchair Users
Provides fashionable clothing for wheelchair users.

Disability Advocacy

Durable Medical Equipment (DME)

Exercise / PT Equipment
A stationary bike with a motor that can help you to exercise, even if it is not possible for you any longer. Especially designed for people with physical limitations.

Famous People with Polio
A page dedicated to all polio survivors.

Handicapped Traveling

Health Care Resources
Doctors/Clinics/Hospitals/Rehab Resources 

History Professor Wins Pulitzer Prize
The University of Texas at Austin's David M. Oshinsky has been awarded the Pulitzer Prize in the history category for his book 'Polio: An American Story.' Oshinsky is the George Littlefield Professor of American History.

Home Modifications

Medicines / Herbs

Monthly Tip for PPS'ers
From a Polio Survivor

More Than A March of Dimes
New fund-raising tactics, intense research rivalry spurred polio cure, says historian.

News Articles on Polio/PPS

Orthotics

Oshinsky Interview on Polio
Requires audio player

Post-Polio Fact Sheet

Sertoma Foundation
Headquartered in Kansas City, Missouri, Sertoma is a 501(c)(4) not-for-profit international organization dedicated to “SERvice TO MAnkind”, with 20,000-plus members in more than 650 clubs across Canada, Mexico, Puerto Rico and the United States. Every year Sertoma clubs raise more than $20 million for local community service projects. Through these projects, as well as grants and scholarships, Sertoma clubs return those funds to their respective communities. Helps the handicapped in local areas through local area clubs.

Service Animals

Single & Mismatched Shoes
A list of resources for acquiring mismatched or even single shoes.

Sleep Disorders

Social Security Administration

Support Groups

Survivors' Websites
A list of polio survivors' web pages.

US Government H5N1 Avian Flu Status Page
One-stop access to U.S. Government avian and pandemic flu information. Managed by the Department of Health and Human Services. Get Informed. Be Prepared.

Ventilators
A list of shopping links for warm clothing.
Warm Clothing
A list of shopping links for warm clothing.



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Support Groups   

Atlanta Post-Polio Association

Canada's  National Polio Survivor's Network

Disabilities R Us

Easter Seals of Colorado

Easter Seals of Oregon

Ernie Wollering's Internet PPS Resources
This is a web version of a periodic post about how the Post-Polio Internet resources are organized, and about how to access the information that's available.

Family Care Foundation

Florida East Coast Post-Polio Support Group

Greater Boston Post-Polio Association

Houston Area Post-Polio Support Groups

International Post-Polio Support Organization

Lincolnshire Post-Polio Network
Extensive information service for Polio Survivors and Medical Professionals and offers an expanding catalogued library of full text articles on Post Polio Conditions plus resource directories and newsletters.

Mobile Area Post-Polio Support Group

Mornington Peninsula Post-Polio Support Group
Australia

North Arkansas Polio Support Group
Located in Mountain Home

North Central Florida Post Polio Group

Nth Degree
This site is about enlightened self-interest, yours, mine, everyone's; about recognizing today's injustices and tomorrow's possibilities. A must 'must visit' site for everybody!

Ontario March of Dimes

Polio Association of the Czech Republic
Excellent site full of information.

Pensacola Area Post-Polio Support Group

Polio Connection
Post-Polio Clinic and Support Group, Cincinnati, Ohio.
 
Polio Connection of America

Polio Experience Network

Polio Network of New Jersey

Polio Network of Victoria, Australia

Polio Outreach of Connecticut

Polio Outreach of Washington

Polio Quebec

Polio Survivor Association: California
The Polio Survivor Association is dedicated to education, advocacy and support. They are not a membership organization, but encourage polio survivors to join support groups in their own area.

Polk City Net
Offers free web hosting for polio survivors.

Post Polio Awareness and Support Society of Minnesota

Post Polio Health International

Post Polio Network of New South Wales Austrailia

Post Polio Resource Group of Southeastern Wisconsin

Post Polio Support Group of Ireland

Post Polio Syndrome

Post Polio Syndrome (PPS) Support Group of Northern Nevada

Post Polio UK
Formerly Leicestershire Post-Polio Network.  Extensive information service for Polio Survivors and Medical Professionals and offers an expanding catalogued library of full text articles on Post Polio Conditions plus resource directories and newsletters.

PPS Awareness & Support Society of British Columbia

PPS Info Locator

Roanoke Polio Connection

San Diego Polio Survivors

San Francisco Bay Area Polio Survivors

Saskatchewan Awareness of Post Polio Society

Southern Nevada Association of Polio Survivors

Southern Oregon Post-Polio Support Group
Links do not work, but contact info is listed on the page.

Sunshine Special
Post Polio Support Group of Palm Beach County, Florida.

Tennessee Valley Post Polio Support Group

Texas Bay Area Polio Survivors

Texas Polio Survivors Association (TPSA)

Tucson's Post Polio Support Group

United Spinal Association
United Spinal Association was founded in 1946 by veterans with spinal cord injuries to help Americans with disabilities related to the spinal cord including: spinal cord injuries, multiple sclerosis, polio, spina bifida, and amyotrophic lateral sclerosis (Lou Gehrig’s disease).

Vaccine Associated Polio Society (VAPS)
is a non-profit organization dedicated to ensuring continued medical care and sound public policy for people living with Vaccine Associated Paralytic Polio (VAPP) through education, advocacy and research.

West Central Iowa Post Polio Support Group

West Virginia Chapter of Polio Survivors

World Support Group


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Orthotics

American Podiatric Medical Association

Foot Maxx Orthotics

Hanger Orthopedic Group

International Society for Prosthetics and Orthotics

National Association for the Advancement of Orthotics and Prosthetics (NAAOP)



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Service Animals

ADA Business Briefs

Canine Companions for Independence

Delta Society

Good Dog Foundation

International Association of Assistance Dog Partners (IAADP)

Paws With A Cause

Service Animals in Places of Business

 

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Health Care Resources

American Academy of Physical Medicine and Rehabilitation

American Arthritis Foundation

American Association of Neuromuscular & Electrodiagnostic medicine

American National Institute of Health

American Occupational Therapy Association (AOTA)
The nationally recognized professional association of more than 35,000 occupational therapists, occupational therapy assistants, and students of occupational therapy.

Brain Physiology in Polio Survivors: A study currently recruiting patients

Case Management Society of America
The Case Management Society of America is an international, non-profit organization founded in 1990 dedicated to the support and development of the profession of case management through educational forums, networking opportunities and legislative involvement. Unique in its composition as a international organization, over 70 affiliated and prospective chapters [including Australia, Hong Kong, and London] in a tiered democratic structure, CMSA’s success and strength is its structure as a member-driven society.

Christopher & Dana Reeve Paralysis Resource Center

Comprehensive Eye Health Guide
The Vision Council of America. Out to make your eyes healthier by encouraging regular eye exams.

Conemaugh Health System Post-Polio Center

Englewood Hospital and Medical Center

Online Health Resources
Dr. Richard Bruno's website for polio survivors.

Post Polio Institute
Dr. Richard Bruno's website for polio survivors.

Post-Polio Health International (PHI)
Constantly updated Post-Polio directory of clinics, health professionals, support groups, and resources. Also includes a broad database of audio, video, and articles pertaining to Post-Polio.

PPS Resources
Constantly updated Post-Polio directory of clinics, health professionals, support groups, and resources. Also includes a broad database of audio, video, and articles pertaining to Post-Polio.

Montreal Neurological Hospital Post-Polio Clinic

MossRehab ResourceNet

Neurospa
Our Treatments Promote the Natural Recovery of Lost Function! Let Our Knowledge and Methods Rejuvinate Your Nervous System!

St. John Hospital Post-Polio Clinic
 

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Medicines

Hsin Kuang Herb
Herbal treatment designed to control infection and slow disease progression, improve symptoms, correct imbalance and adjust immune system, prevent and treat later disease complications, improve the prognosis, and most importantly, to restore function.

Med Support
Offers a low-cost alternative source of prescription medication online.

Medicine Program
Through the special discounts available only to large groups and corporations, this site is able to offer a unique FREE Discount Prescription Drug Program

Merck & Company
A global research-driven pharmaceutical company dedicated to putting patients first.  Merck discovers, develops, manufactures and markets vaccines and medicines to address unmet medical needs.

Use of Medication in People with PPS
An article on the Post-Polio Syndrome Network.
 

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Books    

A Nearly Normal Life: A Memoir

A Paralyzing Fear: The Triumph Over Polio In America

A Summer Plague: Polio and Its Survivors

Barnes & Noble

Books on Disability
Amazon ships the books. CDR (Council on Disability Rights) will receive 5 to 15% of the selling price of each item you buy using the links on this page.

Cutter Incident:
How America's First Polio Vaccine Led to the Growing Vaccine Crisis

Dirt and Disease: Polio Before FDR

FDR's Splendid Deception

Healing the Blues          

In the Shadow of Polio: A Personal and Social History

Living with Polio: The Epidemic and Its Survivors

Lucky One: Making It Past Polio and Despair
by Richard Maus

Managing Post Polio: A Guide to Living Well with Post Polio

No Pity: People with Disabilities Forging a New Civil Rights Movement

Of Myths and Chicken Feet: A Polio Survivor Looks at Survival

Official Patient's Sourcebook on Post-Polio Syndrome:
A Revised and Updated Directory for the Internet Age

Pain Management in Rehabilitation

Patenting the Sun

Poisoned Needle
An online book by Eleanor McBean about the suppressed facts about vaccination

Polio

Polio and Its Aftermath: The Paralysis of Culture

Polio Paradox:
Understanding and Treating "Post-Polio Syndrome" and Chronic Fatigue

Polio Paradox: Uncovering the Hidden History of Polio to Understand And Treat Post-polio Syndrome And Chronic Fatigue

Polio Paradox: What You Need to Know

Polio: An American Story

Post-polio syndrome (SuDoc HE 20.3620:P 84)

Post-Polio Syndrome: A Guide for Polio Survivors and Their Families

Small Steps: The Year I Got Polio

Splendid Solution: Jonas Salk and the Conquest of Polio

Sunrise at Campobello - A Play in Three Acts: The Book

View from the Seesaw

Virus and the Vaccine: The True Story of a Cancer-Causing Monkey Virus, Contaminated Polio Vaccine, and the Millions of Americans Exposed

Walking Fingers: The Story of Polio and Those Who Live With It

World Association of People With Disabilities (WAPD)
A nonpartisan, nonprofit association that represents huge portions of the one in five residents on earth that are being... ALIVE, INVOLVED AND EFFECTIVE in their daily living.  Resource for books, videos and DVDs.
 

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Single & Mismatched Shoes

Coward
Palo Verde at 34th St.
P.O. Box 27800
Tucson, AZ 85726
Telephone: (602)747-5000

Birkenstock
301 SW Madison Avenue
Corvallis, OR 97333
Telephone: (800)451-1459
Fax: (541)752-6313
Email: mailorder@birkenstockexpress.com

Executive Shoes
P.O. Box 9105
Hingham, MA 02043
Telephone: (800)934-1022

Gunboat Shoe Co.
P.O. Box 1462
Agoura Hills, CA 91376
Telephone: (800)GUNBOAT

Mason Shoe Company Catalog
1251 First Ave.
Chippewa Falls, WS 54774
Telephone: (800)826-7030

Massey's
601 12th St.
P.O. Box 10088
Lynchburg, VA 24506
Telephone: (800)462-7739

National Odd Shoe Exchange
P.O. Box 1120
Chandler, Arizona USA 85244-1120

Nordstrom
Telephone: (800)285-5800
They have stores all over the West & will even ship to your home. The Policy was established because of the original Mrs. Nordstrom who had polio.

Reyers
City Centre
Sharon, PA 16146
Telephone: (412)981-2200

Yorke Fashion Comfort Centre
140 E. 55th St.
New York, NY 10022
Telephone: (212)753-5151

OddShoeFinder.com
Buy and Sell Mismatched Shoes Online
Contact by Email
Sharon, PA 16146
Telephone: (412)981-2200
 

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Survivors' Webpages:

Bob Mauro

Carol Ann Normandin

Chava Willig Levy

David Brock

Joni Mitchell

Marilyn Geist

Mark O'Brien

Mike Dolliver

PPSers & Jesus

Polio Memoirs: Eric A. Eales

Polio Survivors & Friends
Photos

Roger Brown

Steve Smy

Viola Pahl

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Home Modifications:

An Accessible Home of Your Own:
Accent Special Publications; Cheever Publishing, Inc.; P.O.B. 700; Bloomington, IL 61702.

The DoAble, Renewable Home:
A guide to help adapt your home as your needs change. Order from AARP Fulfillment, 1909 K St., N.W., Dept. GP; Washington, D.C. 20049. Pamphlet D12470. Free.

Funding Sources
Home modification funding sources from the Council on Disability Rights

Planning for Access:
A Guide to Planning and Modifying Your Home. Eastern Paralyzed Veterans Association. 1-800-444-0120. E-mail: info@epva.org

R.A.L.P.H.
Computerized assistant to make independent living possible by speaking to your house.
 

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Warm Clothing

L. L. Bean http://www.llbean.com/

Campmor http://www.campmor.com/

Diabetic and Comfort Socks http://www.diabeticandcomfortsocks.com/

Eastern Mountain Sports http://www.ems.com/

Lands End http://www.landsend.com/cd/frontdoor/

Outdoor Clothing Online http://outdoorclothingonline.com/

Outdoor Recreation http://www.outrec.com/

Recreational Equipment, Inc. http://www.rei.com/

Sierra Trading Post http://www.sierratradingpost.com/

Sock Company http://www.sockcompany.com/

Winter Silks http://www.wintersilks.com/

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Sleep Disorders

National Sleep Foundation

National Center for Sleep Disorders Research

American Sleep Apnea Association

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News & News Articles                 

Trio of women start support group for post-polio sufferers

ABC's Time Frame - Polio Days

An Approach to the Patient with Suspected Post Polio Syndrome

Articles by Sharman Collins

Can Disability, Chronic Conditions, Health and Wellness Coexist?
An excellent article written by June Isaacson Kailes, MSW, LCSW.

Changes Coming at Durable Medical Equipment Regional Carriers

Coping with Fatigue of PPS

Couple's wedding a collage of cultures
Our members, Richard and Hilary Boone got married their way.

Does PPS Come After an Accident?

From Chicago's Daily Herald
Newspaper article...  Imagination's Creation.

From Philadelphia: Action 6 News
Surgery Gets Stroke Patients Moving

From South Africa's 'The Mercury'
Newspaper article...  Threat Of Polio Outbreak Right On Our Doorstep

HealthLine.com

Howard Hughes Medical Institute

Lincolnshire Library

Motor Syndromes

Non-Paralytic and Paralytic Polio

North Platte Telegraph
Newspaper article...  Helping Hands: Advocates for the disabled.

Post Poliomyelitis Knowledge Base

Post-Polio Network
Included in this series of articles are brief reviews of books on polio or post-polio, updates on post-polio research, information about immunization and the status of global polio eradication, and other items of interest.

Post-Polio Syndrome - Links to News Topics

Public Release Date: 15 June 2006
New roles for growth factors: Enticing nerve cells to muscles

Questia.com

Save Our Shoulders (SOS) A Guide for Polio Survivors

Sioux City Journal
Newpaper article...  Dinosaurs still roam the earth.. with PPS

Southern California PPS Manager: Monthly Newsletter Archives

Still a Mystery: What Causes Postpolio Syndrome?

The Villages Daily Sun
Newspaper article...  Local residents use therapy, group support to treat polio

This Month's Tip for PPS'ers
Written by a Polio survivor now with PPS.

Tom Dempsey's Polio & PPS Information Packet

Use of Medication in People with PPS

What Internists Need to Know About PostPolio Syndrome
Requires Acrobat Reader 
 

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Audio / Video / DVD

21st Century Complete Medical Guide to Polio, Post-Polio Syndrome (PPS), Poliomyelitis, Infantile Paralysis: Authoritative Government Documents, Clinical ... Information for Patients and Physicians (CD-ROM)

Free Audio Book Downloads
Must create a login name & password... then download all the audio books you want.

Maureen McGovern "Works of Heart" Foundation
Maureen McGovern's guided relaxation MP3 for Polio survivors.

Oshinsky Interview on Polio
Requires audio player

Post Polio Syndrome: A Dark Legacy
by Molly Thomas - An online audio book about post-polio (requires RealPlayer)

Sunrise at Campobello: The Video

WAPD Director's Chat (audio)

World Association of People With Disabilities (WAPD)
A nonpartisan, nonprofit association that represents huge portions of the one in five residents on earth that are being... ALIVE, INVOLVED AND EFFECTIVE in their daily living.  Resource for books, videos and DVDs.

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Ventilators

 

 

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